Adult Autism Diagnosis: 7 First Steps & Support Guide
Congratulations on embarking on a journey of self-discovery. Whether you've just received a formal Adult Autism Diagnosis or a high score on an online screening, it's completely normal to feel a mix of relief, confusion, and hope. You might be asking yourself, what should I do after getting a high score on an online autism test? This guide is here to offer empathetic and practical first steps to help you navigate this new chapter with clarity and confidence.
This newfound understanding is a powerful tool. It's not an endpoint, but a beginning—a new lens through which to see your past, present, and future. For many, it's the start of living more authentically. If you're just beginning to explore this possibility, a reliable online autism test can be a valuable first step to gather initial insights before seeking professional advice.
Embracing Your Adult Autism Diagnosis
The first and most crucial step is internal. It involves shifting your perspective and allowing yourself the space to process what this new information means to you. This period is about understanding and compassion, especially for yourself. Many adults who are newly diagnosed autistic find that this knowledge helps reframe a lifetime of experiences.
Understanding Self-Acceptance & Neurodiversity
Your journey begins with embracing the concept of neurodiversity. This is the idea that brain differences, like autism, are natural variations in the human genome—not defects to be fixed. Seeing yourself through this lens promotes self-acceptance. Instead of focusing on challenges, you can start to recognize the unique strengths that come with your neurotype, such as deep focus, pattern recognition, and a strong sense of justice.
Learning about neurodiversity helps you move away from the societal pressure to be "normal" and toward celebrating your authentic self. It allows you to honor your needs without judgment. This is a profound shift that empowers you to build a life that truly fits who you are, rather than trying to fit into a world not designed for you.
Processing Emotions: Relief, Grief, and Identity Shifts
Receiving an autism diagnosis as an adult often triggers a complex wave of emotions. You might feel immense relief—a powerful sense of validation that explains why you've always felt "different." This validation can be incredibly healing.
At the same time, it's common to experience grief. You might grieve for the years you struggled without understanding, for the missed opportunities, or for the person you tried so hard to be. Allow yourself to feel all of it without judgment. This emotional processing is a vital part of integrating your diagnosis into your identity. Your understanding of who you are is expanding, and that's a journey that deserves patience and kindness.
Building Your Support System & Community
You don't have to navigate this journey alone. Connecting with others who share similar experiences is one of the most powerful steps you can take. Finding your community provides validation, reduces feelings of isolation, and offers practical autism support for adults.
Connecting with Other Autistic Adults & Support Groups
Finding your tribe can be life-changing. Look for online forums, social media groups, and local meetups for autistic adults. Platforms like the Autistic Self Advocacy Network (ASAN) or local autism societies often have resources to help you connect with the autistic community. Hearing from others who just "get it" without you having to explain yourself is an incredibly affirming experience.
These groups are a wonderful source of shared knowledge, from coping strategies for sensory overload to tips for navigating social situations. The camaraderie and mutual understanding can be a powerful antidote to a lifetime of feeling misunderstood. If you're at the beginning of this process, taking a free autism screening can provide the clarity needed to take this next step.
Communicating with Loved Ones About Your Diagnosis
Deciding who to tell and how to tell them is a personal choice. When you're ready, think about what you want others to understand. You might explain that this is not a new development but a new understanding of who you've always been. Using clear communication strategies is key.
You could share articles or videos about adult autism that resonate with you. Be prepared for a range of reactions—some people will be immediately supportive, while others may need time to understand. The goal is to help them see that this diagnosis allows you to better understand and care for yourself, which ultimately strengthens your relationships.
Practical Steps for Life After an Autism Test Result
With a new understanding comes the opportunity to make practical, positive changes in your daily life. The question of what to do after autism diagnosis can be answered by implementing strategies that support your well-being and allow you to thrive.
Exploring Workplace & Educational Accommodations
Understanding your rights is empowering. Many workplaces and educational institutions are legally required to provide reasonable accommodations. These aren't special privileges; they are modifications that create an equitable environment for you to succeed.
Examples of workplace accommodations might include noise-canceling headphones to manage sensory input, receiving instructions in writing rather than verbally, or having a more flexible schedule. Start by identifying your specific needs and then explore what options are available. This can dramatically reduce stress and improve your performance and overall well-being.
Seeking Professional Guidance (Therapy, Coaching, Mentorship)
Connecting with a therapist or coach who specializes in adult autism can be incredibly beneficial. They can provide professional guidance tailored to your unique experience. Therapy can help you process the emotional aspects of your diagnosis, develop coping strategies for anxiety or sensory issues, and work on social or executive functioning skills in a supportive environment.
Look for professionals who have a neurodiversity-affirming approach. They will focus on leveraging your strengths and building a life that works for you, rather than trying to make you appear more neurotypical. An online screening is a great document to bring to a professional to start the conversation.
Understanding & Adapting to Your Sensory Profile
Many autistic individuals have a unique sensory profile, meaning you might be over-sensitive (hyper) or under-sensitive (hypo) to things like light, sound, touch, or smell. Understanding your specific sensitivities is the first step toward managing them.
For example, if you are sensitive to bright lights, wearing sunglasses indoors or using dimmer bulbs can help. If you are sensitive to noise, noise-canceling headphones can be a lifesaver. Conversely, if you are hyposensitive, you might seek out strong sensations, like using a weighted blanket for deep pressure. Creating a sensory-friendly environment at home and work can significantly improve your quality of life.
As you continue your journey with an adult autism diagnosis, remember that it is a personal and ongoing path of discovery. Embracing self-acceptance, building a strong support system, and taking practical steps to honor your needs are crucial for living a more empowered and authentic life. This new knowledge is a key that unlocks a deeper understanding of yourself.
Remember, tools like the one on our website are designed to provide initial insights, not a formal diagnosis. They are a starting point. Use the information you gain from a free autism test as a springboard to connect with qualified professionals who can offer the tailored guidance and support you deserve. Your journey is valid, and you have a whole community waiting to welcome you.
Frequently Asked Questions About Adult Autism & Next Steps
What should I do after getting a high score on an online autism test?
A high score suggests you have traits commonly associated with Autism Spectrum Disorder. The most important next step is to consult a qualified healthcare professional, such as a psychologist or psychiatrist specializing in adult autism, for a comprehensive evaluation. An online tool is a screening, not a diagnosis. Use your results from our online autism test as a starting point for that professional conversation.
Can you self-diagnose autism based on online resources?
While self-diagnosis is a valid part of the self-discovery process for many in the autistic community, it is not a formal medical diagnosis. Online resources and tests can provide valuable insights, but they cannot replace a thorough assessment from a trained professional. A formal diagnosis is often necessary for accessing legal protections and workplace accommodations.
How do I get tested for autism professionally as an adult?
Start by speaking with your primary care physician, who can refer you to a specialist. You can also search directly for psychologists or clinics that specialize in adult neurodevelopmental assessments. The process typically involves interviews about your developmental history, questionnaires, and direct observation.
What does a high score on an autism test truly mean?
A high score on a screening tool like the Autism Quotient (AQ) test indicates that you exhibit a significant number of autistic traits. It suggests that exploring a formal assessment may be beneficial for your self-understanding. It doesn't confirm you are autistic but serves as a strong indicator that further professional evaluation is a logical and often helpful next step. You can begin your screening on our homepage.